My Presentation to Federal Access Board 5/23/18

On May 23, 2018, the federal Access Board held a town hall meeting in Phoenix to hear from members of the public about their access needs.  I was honored to be on a panel, along with Susan Molloy, to make a presentation on the access needs of people with multiple chemical sensitivities (MCS) and electromagnetic hypersensitivities (EHS).

Click here to listen to my presentation (7.5 mins).

Susan Molloy and I, as well as several other people with MCS and/or EHS who made public comments, stressed the profound lack of access that people with these disabilities have to housing, health care, employment, and almost the entire built environment.  We urged the Board to take action to increase this access.

For specific next steps, Susan and I endorsed the National Center for Environmental Health Strategies (NCEHS) recommendations for action shown below:

NCEHS RECOMMENDATIONS FOR ACTION
US Access Board, January 8, 2018
 
Unfinished business from the IEQ (Indoor Environmental Quality) Project
(www.access-board.gov/research/completed-research/indoor-environmental-quality):
 
Work with our community to develop a plan to address IEQ and the disability access needs of people with chemical and electrical sensitivities or intolerances.
 
Fulfill the promises of the ADA Accessibility Guidelines for Recreational Activities, September 3, 2002:
 
Develop an action plan that can be used to reduce the level of chemicals and electromagnetic fields in the built environment;
 
Develop technical assistance materials on best practices to accommodate individuals with chemical and electrical sensitivities or intolerances;
      
Address recommendations in the IEQ Report including the need for research on cleaning products and practices that are effective and protective of occupant health.
 
New Initiatives:
 
Create a partnership or working group with the National Council on Disability (NCD) and other agencies as appropriate to address our issues.
 
Appoint a liaison from our community to work with the partnership or working group.
 
Appoint at least one staff member and one board member as a contact on these issues.
 
Support the appointment of an individual with knowledge of these issues to the U.S. Access Board and/or the National Council on Disability (NCD).
 
Facilitate efforts to educate members of the U.S. Access Board and staff, the NCD, and other agencies and organizations, as the opportunity presents.
 
Invite knowledgeable experts and advocates to work with the U.S. Access Board and the National Council on Disability to advance these issues.
 
Convene a meeting with the experts to formalize a plan of action to address the proposed initiatives. This plan should in part include joint hearings or stakeholder meetings sponsored by the U.S. Access Board, the NCD, and other agencies as appropriate, to get input from the community. Invite those with environmental sensitivities or intolerances to “SPEAK for themselves” about their health, access, and disability needs. 
 
 
National Center for Environmental Health Strategies, Inc. (NCEHS), Mary Lamielle, Executive Director, 1100 Rural Avenue, Voorhees, New Jersey 08043 (856)429-5358; (856)816-8820
 
 
 
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